As the holidays approach, I am just posting a very short blog article to let people know that there has been terrific news on the publishing front. But a day ago, Palgrave Macmillan signed a contract with me for the publication of my book Psychiatry Interrogated--an anthology of institutional ethnography investigations into psychiatry--featuring stellar researchers/authors from Canada, the US, the UK, and Poland. About a month and a half before that, Inanna Press signed a contract to publish my second novel--The Other Mrs. Smith, whose fictional narrator is an ECT survivor, struggling to make sense of her life.
And and all, a very good year!
What is the BizOMadness Blog?
This blog is devoted to raising critical awareness of psychiatry generally. It is likewise devoted to the antipsychiatry research projects, publications, and related activities of Dr. Bonnie Burstow. Especially foregrounded are The Psychiatry Project, The Madness Project, and "Psychiatry and the Business of Madness". Related to one another, The Psychiatry Project and The Madness Project involve hundreds of interviews, a dozen focus groups, analysis of several hundred documents and their activation, and dedicated periods of institutional observation. The culmination of both as well as of decades of related interviews and activities is "Psychiatry and the Business of Madness" (timely updates on its publication will be provided)--a cutting edge book in which psychiatry is investigated from multiple angles and which begins to tackle the inevitable question: So if we get rid of psychiatry, where do we go from there?
For the Events page to find events related to this research or this book, see
For the Events page to find events related to this research or this book, see
http://bizomadnessevents.blogspot.ca/
To check out reviews of Psychiatry and the Business of Madness and related publications, see http://bizomadnessreviews.blogspot.ca/
Thursday, December 24, 2015
Monday, October 26, 2015
Could Life Be Sweeter?: Signing a Contact for "The Other Mrs Smith"
Just when I thought life could get much sweeter for those of us in the antipsychiatry world, the Canadian feminist publisher Inanna sent me a contract to to publish my blatantly antipsychiatry novel "The Others Mrs Smith."
Why am I so excited about this novel? But it conveys the reality of ECT in the way only a novel can, and yet almost no novel really does.
There is a vast array of different characters in this novel, many of them very colourful. For example, there is Gerald, a very kind transman with a flair for research and a dim view of the world; Earl Smith, the overbearing Newfoundland husband and an avid environmentalist; Rose Cohan who is Naomi¹s twin, a bisexual, a twin with a keen telepathic ability; Ruth, Naomi¹s angry daughter; Ida Cohan, Naomi¹s mother, a clever and witty woman, who has the unfortunate habit of creating lifelong feuds at the drop of a hat. And then there is Jack, fondly known as the indomitable Jackman--an extremely helpful fellow patient, an Aboriginal man who is the admiration of most all the patients at St. Pukes, for among other things, as Naomi puts it, he rolls "the meanest cigarette in Turtle Island. That said, the novel revolves around one character, in whose head we frequently find ourselves mired--narrator and north end Winnipeg Jew Naomi Cohan Smith. Critical to her circumstances is having been subjected to ECT (electroconvulsive therapy), and as a result suffering enormous memory loss, additionally an estrangement from her family of origin that she has no way to wrap her mind around. From the moment that we come across this confused woman wandering the corridor of St. Patricks-St Andrews Mental Health Centre (referred to by the inmates as "St. Pukes"), not knowing who she is or even what species she belongs to, Naomi's plight becomes our world--what has happened to her, what will happen to her. Just as the protagonist slowly comes to terms with the damage as well as the hidden details of her life, so do the readers.
Via the device of flashback chapters, the novel moves back and forth in space and time, between a relatively happy childhood in the legendary Jewish north-end Winnipeg of the mid 1900s and her post-ECT adulthood in Toronto. In this regard the structure of the novel itself may be seen as a metaphor for Naomi¹s mind. While the movement in space continues, the foray through the past comes to an abrupt halt when we come to the limits of Naomi¹s memory.
The novel per se begins a few years after of what is called Chapter One, with the kindly figure of Gerald as he goes about the unusual task of cleaning someone else¹s house. The introduction of Gerald sets the stage for a query that haunts the novel. Putting Naomi¹s binders back in order, he stops to re-read Back Binder Number Three. He ends it, feeling certain that there is something more to this binder that meets the eye.
What follows is what Naomi calls her memoir (in three books). Other character breath life into this memoir and this novel. Examples are It begins with her in the hospital. An uncompromisingly unsentimental novel, every time an easy or cliché solution appears to be offered, it is refused. The novel culminates in Naomi making something important of her life, of her creating meaning and purpose despite the very real damage, indeed, out of it and along side it. The final vision with which it leaves us is one of wisdom. Critical events which transpire along the way include: fleeing Toronto and indeed her controlling husband, building a new foundation with the twin from whom she has been estranged, establishing dual residence so as to connect up with her daughter. It ends with Naomi, her sister, and Gerald taking aim at the very institution which is her nemesis and in the process uncovering the hidden truth which lurks in the pages of Black Binder Number Three.
The novel, as circumstances will have it, will not be coming out till 2017, but already I am looking forward to it. And already book launches in two different countries are being planned.
Check this blog and check Facebook for updates.
Why am I so excited about this novel? But it conveys the reality of ECT in the way only a novel can, and yet almost no novel really does.
There is a vast array of different characters in this novel, many of them very colourful. For example, there is Gerald, a very kind transman with a flair for research and a dim view of the world; Earl Smith, the overbearing Newfoundland husband and an avid environmentalist; Rose Cohan who is Naomi¹s twin, a bisexual, a twin with a keen telepathic ability; Ruth, Naomi¹s angry daughter; Ida Cohan, Naomi¹s mother, a clever and witty woman, who has the unfortunate habit of creating lifelong feuds at the drop of a hat. And then there is Jack, fondly known as the indomitable Jackman--an extremely helpful fellow patient, an Aboriginal man who is the admiration of most all the patients at St. Pukes, for among other things, as Naomi puts it, he rolls "the meanest cigarette in Turtle Island. That said, the novel revolves around one character, in whose head we frequently find ourselves mired--narrator and north end Winnipeg Jew Naomi Cohan Smith. Critical to her circumstances is having been subjected to ECT (electroconvulsive therapy), and as a result suffering enormous memory loss, additionally an estrangement from her family of origin that she has no way to wrap her mind around. From the moment that we come across this confused woman wandering the corridor of St. Patricks-St Andrews Mental Health Centre (referred to by the inmates as "St. Pukes"), not knowing who she is or even what species she belongs to, Naomi's plight becomes our world--what has happened to her, what will happen to her. Just as the protagonist slowly comes to terms with the damage as well as the hidden details of her life, so do the readers.
Via the device of flashback chapters, the novel moves back and forth in space and time, between a relatively happy childhood in the legendary Jewish north-end Winnipeg of the mid 1900s and her post-ECT adulthood in Toronto. In this regard the structure of the novel itself may be seen as a metaphor for Naomi¹s mind. While the movement in space continues, the foray through the past comes to an abrupt halt when we come to the limits of Naomi¹s memory.
The novel per se begins a few years after of what is called Chapter One, with the kindly figure of Gerald as he goes about the unusual task of cleaning someone else¹s house. The introduction of Gerald sets the stage for a query that haunts the novel. Putting Naomi¹s binders back in order, he stops to re-read Back Binder Number Three. He ends it, feeling certain that there is something more to this binder that meets the eye.
What follows is what Naomi calls her memoir (in three books). Other character breath life into this memoir and this novel. Examples are It begins with her in the hospital. An uncompromisingly unsentimental novel, every time an easy or cliché solution appears to be offered, it is refused. The novel culminates in Naomi making something important of her life, of her creating meaning and purpose despite the very real damage, indeed, out of it and along side it. The final vision with which it leaves us is one of wisdom. Critical events which transpire along the way include: fleeing Toronto and indeed her controlling husband, building a new foundation with the twin from whom she has been estranged, establishing dual residence so as to connect up with her daughter. It ends with Naomi, her sister, and Gerald taking aim at the very institution which is her nemesis and in the process uncovering the hidden truth which lurks in the pages of Black Binder Number Three.
The novel, as circumstances will have it, will not be coming out till 2017, but already I am looking forward to it. And already book launches in two different countries are being planned.
Check this blog and check Facebook for updates.
Saturday, October 3, 2015
Why Did 158 People Plus Attend An Antipsychiatry Book Launch?: A Reflection
Two weeks ago, on Friday September 18 2015,
people assembled at Ontario Institute for Education of the University of
Toronto for the last of the three international book launches for Psychiatry and the Business of Madness,
preceded that same day by a press conference. While others also spoke, major scheduled
speakers included the author (me), Member of the Provincial Parliament (MPP) Cheri
DiNovo, and leading Canadian mental health lawyer Anita Szigeti. There were
many wonderful highlights of the evening. Ones that immediately come to mind
are: the articulation of the findings of the research, all leading to the
inescapable conclusion that psychiatry has no foundation and should be phased
out (and while admittedly, it would be difficult under the circumstances, not a
soul raised an objection). Member of Parliament Cheri DiNovo’s thrilling
statement that while it was virtually impossible to move on “reining in
psychiatry” before, “now we have the facts -- and now there is no excuse.” Leading
mental health lawyer Anita Szigeti declaring Psychiatry and the Business of Madness a must-read for lawyers and professionals everywhere. ECT
survivor Connie Neil bearing witness to the atrocity to which she was
subjected. All good. All riveting.
That said, there are several astounding
facts about the Toronto book launch that are not captured in this description.
Half an hour into the launch, according to the official count, there were 158
people in attendance. I kid you not! 158! And an hour later, there were at
least 15 additional people. This is an amazing turnout for the launch of any book,
never mind something as far from the mainstream as antipsychiatry. And what adds
to the triumph, well before the launch began, there was standing room only, with
the Nexus Lounge at OISE (room where the launch was held) virtually packed to
the rafters. “Bonnie, never in its history has any event in the Nexus Lounge drawn
so many,” observed one excited OISE staff member in amazement. Moreover, people
remained the full two hours, including the people who were standing. Which
leads me to ask these questions:
How is it that such a huge crowd showed up?
And how is it that so many people, who after all were only able to stand,
remained without budging a full two hours?
Something of an enigma, though there are a
number of possible answers. To touch on a few of these:
Answer One: All of the speakers were well
known. Absolutely true. And without question, the reputation of the speakers
was a factor. That said, reputation is clearly not the whole of it for we have
had a number of these speakers together on
a stage before, with nothing like such a stellar result.
Answer Two:
The organizers did a great job publicizing. Again, true—and much thanks
to everyone for the hard work. However, despite doing what was ostensibly a first
rate job of publicizing before—at one point several years ago, note, we even
had a professional publicist helping us—never have we drawn an audience of this
proportion.
Answer Three: The book was known to be
controversial: This is the least compelling of the answers for everything
critical of psychiatry is controversial. And again, historically, such events
have not tended to deliver anything close to this turnout.
Which brings me to a final answer—one that
I am suggesting has considerable explanatory value: There is a hunger out there
for a foundational critique of psychiatry—something that pulls no punches,
minces no words. That is, there is a hunger for a reasoned antipsychiatry
position. Something that explains how we ended up here, provides solid evidence
that psychiatry should be abandoned, and begins theorizing what we might do instead.
Moreover—and here we connect up with the first answer—people were acutely aware
that this is exactly what this book and this launch were all about.
Elsewhere I have written that the tide is turning
against psychiatry (see http://www.madinamerica.com/2015/09/yes-the-tide-is-turning-against-psychiatry/).
May I suggest that the turnout on September 18th is yet another
indicator that this is so.
What is, as it were, an accompanying indicator,
besides that the audience were hanging on the various presenters' every word,
who was present was not just “the usual suspects.” In attendance was a clear cross
section of society, from youth to the elderly, from survivors to professionals,
from the mainstream to the counter culture, from the poor to the ostensibly
well off. Again, all of which would have been unthinkable but a few years ago.
There is a change in the air. People have
come to strongly suspect that the emperor “has no clothes.” A minority for
sure, but a healthy minority are ready to start entertaining modes of living
together and of approaching human distress in profoundly different ways. And
indeed, the people in attendance could sense that change, additionally could
sense that everyone around them could sense it too. Hence the high spirits.
The point here is, while social change
agents often declare events historical moments which prove not to be, and oftentimes
we are simply hoping that our words will be self-fulfilling, there was a
palpable feeling in the room that we had genuinely arrived at one such moment. Only
time will tell whether rightly or wrongly.
Was there any downside to the day? There
was, and fellow old-timers in the movement may well be able to guess what–-the
conspicuous absence of the media.
How many “regular” members of “The Fifth
Estate” turned up? Despite a major effort on the part of the organizers,
including reaching out to over 300 media people, in a word, none. But in this
very conundrum or rather in our response to it lay part of the beauty and the
brilliance of that day. We responded in the only way that made
sense—proactively. Having been “around the block” enough times that we had more
than an inkling that this would happen, we met four days prior to the event to
strategize. We proceeded to create our own press—“The Peoples' Press”—and that
press turned up in full force at both events, asked insightful questions, and
covered and indeed covered brilliantly several of the more stirring highlights
of the day—of the press conference in particular (for highlights of the press
conference, see https://www.youtube.com/watch?v=pjtJvjDG4uM).
So the bad news is, the mainstream media is
still ignoring this book (Burstow, 2015). They are likewise ignoring Whitaker's
and Cosgrove's (2015) book and indeed, all the leading antipsychiatry and
critical psychiatry publications that have come out this year (for a discussion
of why and for a number of suggestions about what to do about it, see http://www.madinamerica.com/2015/04/getting-anticritical-psychiatry-authors-read-case-book-activism/).
The good news is the organizers did not rely on the traditional media (a
default mode which ill serves us). We were proactive. And thanks to a combined
effort, both the book and the event are literally “all over” the social media—and
note, as long as this is the case, sooner or later the mainstream press will be
forced to take note.
The power of the social media—herein lay
the new reality. Albeit hardly everything—and we ignore its limitations to our
detriment—it substantially alters the “playing field.” Moreover and more to the
point, it works to the advantage of those of us involved in counterhegemonic
struggle.
To end this article with one final
highlight of that memorable day, that evening Member of Parliament Cheri DiNovo
spoke confidently of our winning this fight—a note that we had not heard struck
by a legislator heretofore. Correspondingly, she reminded us of the famous
Gandhi quote: “First they ignore you. Then they ridicule you. Then they fight
you. And then you win.” (see http://philosiblog.com/2011/05/25/first-they-ignore-you/).
I would add, while we are still in the
“ignoring” stage, there are distinct signs of fighting here and there (e.g.,
the special issue of Acta Psychiatrica
Scandinavica; see http://onlinelibrary.wiley.com/doi/10.1111/acps.2014.131.issue-1/issuetoc).
Moreover, 158 people plus from all walks of
life turning up at a launch of this ilk is hardly being ignored!
References
Burstow, B. (2015). Psychiatry
and the business of madness. New York; Palgrave.
Wednesday, September 30, 2015
Canada -- A Human Rights Violator
In Canada, we pride ourselves on our human
rights record. That noted, while this is hardly the only area where we badly
slip up, there is one area where we habitually fall into the abuser category
with almost no one noticing. Did you know that every single mental health law
in Canada contravenes human rights as understood by the UN? Our practice in
this area is likewise in contravention. Nor is there any discussion of this infraction.
Correspondingly, not only are we doing nothing to remedy it, in the name of
promoting "good mental health," we are constantly advancing changes which
magnify the violation.
More particularly, there are a number of
instruments of the United Nations which have made rulings that we ignore. To
focus in on the most significant, I would draw readers' attention to the
Convention for the Rights of People with Disabilities (CRPD; see http://www.un.org/disabilities/convention/conventionfull.shtml),
of which Canada is a signatory. We contravene a huge number of articles therein,
but I would focus in on two -- articles 12 and 14 -- for their contravention is
integral to how we approach what is called "mental health."
Article 14 reads:
State parties
shall ensure that people with disabilities, on an equal basis with others:
a. Enjoy the right to liberty and security
of the person
b. Are not deprived of their liberty
unlawfully or arbitrarily … and that the existence of a disability shall in no
way justify a deprivation of liberty.
Given this provision -- and note, we signed
this Convention -- every single mental health act in Canada violates our
convention obligations for indeed, enabling deprivation of liberty,
facilitating involuntary lockup is the mainstay of our mental health
legislation. Now people may think that what is happening here is okay because
it is done under the auspices of carefully worded laws or because the "mentally
illness" area is somehow exempt. The Committee responsible for monitoring
compliance, however, is clear that is precisely these laws and the practices
thereby authorized that are unacceptable. In this regard, it provides the
following guidelines:
Involuntary
commitment of disabled people based on health care grounds totally violates the
absolute ban placed on deprivation of liberty on the basis of impairments ... The
Committee has repeatedly stated that the State parties should repeal provisions
which allow for involuntary commitment of persons with disabilities in mental
health institutions based on actual or perceived impairment. see http://www.ohchr.org/Documents/HRBodies/CRPD/14thsession/GuidelinesOnArticle14.doc).
And to place this issue on an ethical
rather than just a legal footing, even had we not signed such a provision, it
minimally should worry us that our everyday practices constitute a human rights
violation according to a human rights authority as credible as the United
Nations.
Now the violation of Article 14 is cut and
dry. Judging Canada's noncompliance with Article 12 is more complicated.
Article 12 unequivocally bans all involuntary psychiatric "treatment."
That is, it states, "State parties shall recognize that persons with
disabilities enjoy legal capacity on an equal basis with others in all aspects
of life." Enjoying legal capacity on an equal basis, to be clear, means being
equally entitled to make one's own decisions, and again, it is precisely
depriving people of the right to make their own decisions on matters like
"treatment" on the basis of deemed incapacity which is core to our
mental health legislation.
Now throughout Canada we have built in very
minimalist approximations of human rights protection via a mechanism known as "substitute
decision making." People are entitled to appoint a substitute
decision-maker to make decisions for them in the event of being deemed "incapable."
To be clear, in no way is this in keeping with the UN ruling, as the Canadian
officials signing the Convention were well aware. Accordingly, Canada
stipulated a reservation on article 12, stating that we understand it to mean
that substitute decision-making is allowed. Which led to the Committee
responsible for monitoring compliance to provide the following clarification:
"The Committee shall ensure that the provision of health services,
including mental health services are based on free and informed consent of the
person concerned … States have an obligation not to permit substitute
decision-makers to provide consent on behalf of persons with disabilities."
(article 11)
With this clarification, Canada's
reservation "kicked in." As a signatory, it in essence protected us from
being forced to truly honour the human right in question. That said, the moral
imperative remains. Nor, I would add, is the CRPD the only UN instrument whose
rulings on issues like involuntary treatment we as Canadians are defying. In
this regard, the U.N.'s Special Rapporteur on Torture, for example, declared the
involuntary subjection of people to antipsychotics (major class of psychiatric
drugs) a form of torture (see chapter by Tina Minkowitz, in Bonnie Burstow,
Brenda LeFrançois, and Shaindl Diamond's Psychiatry
Disrupted): And torture, note, is paradigmatic human rights violation.
The fact that we are so far from compliance
with international standards should give us pause. Now I am aware that the
United Nations determinations may be alarming to some. How can we protect
ourselves if we do not lock people up when they are psychotic?, some might
wonder. And how can those so "impaired" possibly have the wherewithal
to make reasonable choices for themselves? While I cannot adequately address
all such concerns in one short article, I would point out that research shows
that people deemed mentally ill are no more dangerous than anyone else. Correspondingly,
while of course looking out for people in emotional difficulty is a "must,"
given that the choices made on their behalf have them hooked on brain-damaging
drugs, it is hard to believe that on average those deemed "mentally ill"
would make any worse choices for themselves than are currently being made for
them (not that enjoying basic human rights can ever be contingent on making "good
decisions"). And lest people think the CRPD is licensing benign neglect, I
would point out the CRPD explicitly specifies that if people need help making decisions,
it behooves the state to assist them, much as one might assist a physically disabled
person to gain entrance to a building. In other words, the UN is not being
naïve or thoughtless here. While I personally would prefer that the state not
be the help mechanism but the community itself, providing assistance as needed is
transparently part of the Convention obligation.
That said, not only do we do nothing of
this nature, we routinely drag people to "hospital" against their
will, drug people against their will, and indeed control their every move. Correspondingly,
we interpret all objections to such treatment as evidence of
"incapacity." Nor are we as a country discussing such issues, never
mind making plans on how to bring ourselves into compliance. In fact, quite the
opposite, we keep looking for ever new ways to make it easier to violate
people's rights. Nowhere is this more obvious than with Ontario's Bill 95.
A piece of legislation which has already
received second reading, Bill 95 (http://www.ontla.on.ca/web/bills/bills_detail.do?locale=en&Intranet=&BillID=3316)
would authorize a special committee to propose legislation that would further erode
the already woefully inadequate rights that psychiatrized people currently enjoy.
In the name of ensuring good mental health for everyone, it would make it easier
to both commit and to treat involuntarily. For example a change is proposed to what
is called the A criteria whereby even a "perceived" danger to self or
other that is in no way physical in nature would be grounds for involuntary commitment.
And instead of "involuntary treatment" being held in abeyance while
the person was under initial observation, it would allow for immediate involuntary treatment (see http://www.ontla.on.ca/committee-proceedings/committee-reports/files_pdf/Select%20Report%20ENG.pdf)
Moreover, parental consent for "treating" children would be
unnecessary. Additionally, in the name of prevention, it would unleash armies
of "mental health professionals" into our schools, all poised to swoop
down on youth and deprive them of rights. In other words, it would be
intensifying our human rights violation.
As such, it is time for the average citizen
to take a long hard look at what is being done in our name. A good beginning is
asking ourselves these questions:
How do we feel about Canada being in such
profound violation? Why do our elected representatives not attend to the
violation? How is it that we have become so comfortable with compulsion and
detention that we have lost sight of the importance of basic human rights? Is
it really okay to deprive folk of rights just because we are scared of them or for them? How is it that that the most esteemed international body
in the world can not only conceive of but actually legislate what the Canadian
state appears to find unthinkable?
As you ponder this, I ask you to avoid pat
answers like it behooves us to ensure that everyone enjoys "good mental
health" for besides that the underlying concepts lack validity, it is
precisely such discourse which has landed us in the current untenable situation.
In ending, I would touch once again on Bill
95. It is clearly promoting an agenda that is a danger to everyone -- but not equally.
Who are especially targeted as needing extra help (read: extra intrusion)? Children.
Seniors. The Aboriginal community. All of which should sound an alarm.
Which brings me to two final questions: Is the
rampant and ever increasing violation of the human rights of vulnerable
populations what we want our country to stand for? And do we really think that
it is the only way?
(If your answer is no, please contact your
elected representatives and make your objection known.)
Thursday, September 3, 2015
Yes, the Tide is Turning Against Psychiatry
The suggestion embedded in this article’s
title seems counter-intuitive. How could the tide be turning on psychiatry when
the institution has never been so strong? And indeed indicators of its growing strength
and tenacity are all around us. The exporting of its model to the global south via
the World Bank, the emergence of outpatient committal, the explosion of funding
for psychiatric research (see Burstow, 2015). Correspondingly, daily are there calls
for most aggressive “detection” and “treatment” (e.g., Jeffrey Lieberman, 2015). And the
mainstream press has never been more closed to truly foundational critiques. That
acknowledged, let me suggest that such intensification is common when an old
system is in the early days of crumbling.
Of course, intensification itself is hardly
an indicator that a reversal is at hand. So how would we know? Examples of
possible indicators are: Ever growing critiques from inside and outside the
profession, growing discomfort with “anomalies” (in essence, the indicators of
a paradigm shift spelt out by Kuhn, 1962). Established moral authorities making
unprecedented negative pronouncements about the current state of affairs. The
surfacing of more and more tales of corruption and fraud. The rising up of those
subjected to it. Each of these signs and more we are experiencing now with
psychiatry -- hardly conclusive individually, but taken together, convincing
portents of a societal shift.
While psychiatric
anomalies have always been with us, note, never have they been so visible. Even
as we hear calls for the early detention and treatment of “mental illness” to
prevent school shootings, for instance, we discover that the majority of the
shooters were on psychiatric drugs. Correspondingly,
as the system pushes western ways of handling “schizophrenia” on the rest of
the world, World Health Organization studies conclude that the countries with
the highest rates of “recovery” are those without
the “benefit” of modern “treatment” (see
Robert Whitaker, 2010). As for the dissatisfaction experienced by people in the
psychiatric and related professions, just check out the speakers at the 2015
conference of the International Society for Ethical Psychiatry and Psychology (http://psychintegrity.org/plenary-talks/),
and you will quickly get a sense of it. Telling likewise is what happened in the
years leading up to the release of DSM-5. While their goal, of course, was not "changing”
but rather “saving” the current paradigm, well in advance of DSM-5’s release, in
what was a historically unprecedented move, the two previous taskforce chairs, Robert
Spitzer (2009) and Allen Frances (2009), each came out with hard-hitting
critiques of what their colleagues were doing, describing it as once bad
science and an exercise in subterfuge—critiques echoed, I’d add, to an
unparalleled degree by mainstream media. At the same time, a plethora of
radical survivor groups have sprung up. And sites dedicated to deconstructing psychiatry
are legion (e.g. madinamerica.com and endofshock.com).
By the same token, proofs of fraudulent
trials and fraudulent claims of discoveries abound. Witness David Healey’s
(2009) unearthing of the systematic “cooking” of drug trials. Witness the exposés
on the Breggin site (http://www.breggin.com/).
And note the publishing this year of a book which clearly establishes that the American
Psychiatric Association has intentionally misled the public throughout its history
-- about “mental illness” being a proven brain disease, for example, about the
efficacy of the drugs (Whitaker and Cosgrove, 2015).
Even as these developments unfold, major international
organizations have cast doubt on psychiatry both morally and scientifically. Take
the aforementioned World Health Organization’s studies. And what is
particularly suggestive, in its role as moral compass, two different
instruments of the United Nations have declared involuntary neurolepticization a
form of torture. Moreover, trace the practical implications of the recently
minted Convention on the Rights of People with Disabilities and it becomes
clear that it positions a key modus operandi of psychiatry everywhere -- involuntary
treatment -- as a human rights violation (a victory, I might add, for which the
vintage work of groups like the Center for the Human Rights of Users and
Survivors of Psychiatry must largely be credited; for details, see Minkowitz,
2014). All of which, note, paves the way for the current survivor-led campaign
to rescind involuntary committal laws throughout North America.
Another salient indicator comes from non-psychiatric
medical practitioners and students, for quiet though they remain about it, cogent
evidence suggests that their opinion of psychiatry has plummeted. A major study
written up by H. Stuart et al. (2015) involving 1057 non-psychiatric medical
teaching faculty in 15 countries, for example, shows that the vast majority
hold a highly negative view of psychiatry. They find psychiatrists, for
instance, too powerful, “unscientific,” and “illogical.” Correspondingly, there
is currently a formidable decline in the percentage of medical residents open
to specializing in psychiatry. In the UK, for example (once a psychiatric hotbed),
less than 5% of medical students choose to enter psychiatry (see Read, 2015).
Indeed, psychiatrists
are aware of their faltering reputation. And in what is an unprecedented move, in
January of this year a major psychiatric journal (Acta Psychiatrica
Scandinavica) devoted a special issue to
psychiatry’s “image problem” (Vol. 131; see http://onlinelibrary.wiley.com/doi/10.1111/acps.2014.131.issue-1/issuetoc), with leading figures in psychiatry weighing in -- e.g., current
and former presidents of the European Psychiatric Association and the current
president of
the World Psychiatric Association. What the very
existence of this special issue seems to suggest is that so bad is the public
image that the upper echelons of the industry are taking alarm.
Correspondingly, their response is how regimes of ruling commonly respond when their
seemingly unquestionable authority begins to slip away -- for example, portraying
themselves as victims and blaming everyone else. Bhugra (2015), current
president of the World Psychiatric Association, for instance, lays the blame on
the “anti-psychiatry media” -- ironic, given the enormity of the media’s
support.
That noted, if the tide is turning – and, as
shown, it is -- the question is how far? And what form will the change take? At
the moment, despite critiques which demonstrate psychiatry’s utter invalidity,
the primary discourse is reformist. This news is worse than it appears, for
throughout the centuries, in the long run, reform agendas have only served
psychiatry. Temporarily, for sure, they create a modicum of improvement, like with
“moral management.” Nonetheless, as shown by Burstow (2014), each and every
tempering of psychiatry under a reform agenda has culminated in the return of
biological psychiatry with a vengeance. As such, despite good intentions—and I
am in no way doubting the intentions and hard work of most of the people
involved -- all “reformism” ultimately succeeds in doing is losing the momentum.
That said, at this point, many movement people
are keenly aware of this dynamic. Correspondingly, we are seeing a renewed
interest in psychiatry abolition, especially versions committed to societal
rebuilding. The reception which I have been receiving among psychiatric
survivors – and survivors, after all, is where the resurgence of subjugated knowledge
must come from -- is suggestive in this regard.
Significantly, up
until a few years ago, there was but muted interest in psychiatry abolition within
survivor circles. What I am seeing now, conversely, is an abundance of posts of
the ilk “If antipsychiatry is what Bonnie says it as, then I am
antipsychiatry.” Additionally, more and more antipsychiatry websites are
popping up. The point is, antipsychiatry -- and not just any type but one of a
visionary nature -- is markedly on the rise.
And indeed, a visionary antipsychiatry is precisely
psychiatry’s worst nightmare—hence the current barring of foundational
critiques by the mainstream media and hence psychiatry’s worried references to “antipsychiatry.”
Simple reform, as history shows, is inevitably coopted. And critique alone can
easily be dismissed. A true revolution -- one involving reclamation -- is a
whole different matter.
In ending, let me invite those in the Toronto
area interested in continuing this conversation to come to my book launch on September
18 (5:30, Floor 12, 252 Bloor West). And more generally, let me ask all readers:
Is a coercive, invalid, and damaging “system” really the best we can do? What
makes setting our sights on but tempering it and/or but adding “alternatives” the
“practical” option?
And now that the tide is turning, what can
the average citizen do so that this time round, we as a society do not “squander”
the moment?
(for this and related articles, see http://bizomadness.blogspot.ca).
References
Bhugra, D. (2015). To be or not to be a psychiatrist? Acta Psychiatrica
Scandinavica, 131, 4-5.
Burstow, B. (2014). Liberal “mental health” reform: A fail-proof way
to fail. Mad In America. November 17
(http://www.madinamerica.com/2014/11/liberal-mental-health-reform-fail-proof-way-fail/)
Burstow, B. (2015). Psychiatry
and the business of madness. New York: Palgrave Macmillan.
Frances, Allen (2009). A warning sign on the road to DSM-V. Psychiatric Times. June 26 (http://www.psychiatrictimes.com/articles/warning-sign-road-dsm-v-beware-its-unintended-consequences).
Healey, D. (2009). Psychiatric
drugs explained. London: Elsevier.
Kuhn, Thomas (1962). The
structure of scientific revolutions. Chicago: University of Chicago Press.
Lieberman, J. (2015). How to halt the violence. The New York Times. August 28 (http://www.nytimes.com/2015/08/29/opinion/how-to-halt-the-violence-treat-mental-illness.html?smid=fb-share).
Minkowitz, T. (2014). Convention on the rights of people with
disabilities and liberation from psychiatric oppression. In Bonnie Burstow,
Brenda LeFrançois, and Shaindl Diamond (Eds.). Psychiatry disrupted (pp. 129-144). Montreal: McGill-Queen’s
University Press.
Read, J. (2015). Saving psychiatry from itself. Acta Psychiatrica
Scandinavica, 131, 11-12.
Spitzer, R. (2009). DSM transparency: Fact or rhetoric. Psychiatric Times. March 6 (http://www.psychiatrictimes.com/articles/dsm-v-transparency-fact-or-rhetoric).
Stewart, H. et al. (2015). Images of psychiatry and psychiatrists. Acta Psychiatrica Scandinavica,
131, 21-28.
Whitaker, R. (2010). Anatomy
of an epidemic. New York: Broadway Paperbacks.
Whitaker, R. and Cosgrove L. (2015). Psychiatry under the influence. New York: Palgrave Macmillan.
Thursday, August 27, 2015
What is The Bonnie Burstow Blog All About?: Getting A Sense of the Territory
[my first blog on Rabble, with whom I also maintain a blogsite. For the original publication of this article, see http://rabble.ca/blogs/bloggers/bonnie-burstow/2015/08/what-bonnie-burstow-blog-all-about-getting-sense-territory
]
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As I sit down to draft the first of what
will hopefully be a long series of articles for Rabble.ca, I am aware that I am
carving out a very new type of space; and so an introduction of sorts is in
order. So what is this new space about? The clue is in the title.
All words in the title of the blog site are
pointers, signaling what to expect. On a relatively simple level, The Bonnie Burstow Blog is antipsychiatry.
At the same time, the positioning of the phrase "Toward a World with
Commons" announces that the blog is concerned with piecing together a
vision of a better society that we might jointly build together—one based on
such values as sharing, mutuality, equality, participatory governance, freedom.
Does the society being envisioning include services for those with emotional
difficulties (people currently deemed "mentally ill")? Absolutely, and an abundance thereof but not
services "managed" by "experts" -- for rule by experts,
however benign individual experts may be, is part of what has landed us in the
current morass.
So what kind of articles might you find?
Articles that demonstrate psychiatry’s invalidity and the harm it does, which
makes visible the ideological circularity and how psychiatry functions as a
regime of ruling, that illustrate the tie-in with other forms of oppression
(e.g., sexism and racism). Articles that explore non-psychiatric community-oriented
approaches to helping people, which, for example, delve into participatory ways
of resolving conflict, while attending to the well being and safety of everyone.
Articles on how to create a society where people can thrive, where there is
greater acceptance of difference, which is less alienated/alienating. In this
regard, the "commoning" of services are likely to figure particularly
prominently, for it is precisely what we create together as opposed to what is bestowed
upon us where I would suggest that the promise lies.
That said, my suspicion is that at that this
point, most readers are to varying degrees in agreement with expanding the social
commons. I suspect as well that many are uneasy about the enormous power of psychiatry,
also by its relentless pursuit of ever more markets. This withstanding, I
suspect as well that most are convinced that even though it ought to be reined
in, that psychiatry has a legitimate place in the scheme of things, for however
important the social is, it is believed, we are, after all, talking about bone
fide illnesses for which some measure of "medical treatment" is in
order. That is, there are "diseases" here for which substances like
psychiatric drugs are necessary. Such are the beliefs of most people. And for
the most part, such are what people are
socialized to believe.
In the interests of helping readers begin
grappling with this common set of beliefs right from the start (and please
excuse the objectivizing language) let me introduce some relevant "myths"
and "facts":
MYTH/PSYCHIATRIC CLAIM:
Minds can be ill,
hence the validity of the concept "mental" illness.
FACT:
Minds are
activities of bodies and can no more be ill than other activities like "running"
can be -- also an activity of the body. Only an organ (the brain, for example),
can be the site of an illness.
MYTH/ CLAIM:
It has been
proven that "mental illnesses" are bone fide brain diseases.
FACT:
While claims
about proof are repeatedly made, none of the phenomena framed as "mental
illnesses" have been shown to be a "brain illness." Not even "schizophrenia"
(see in this regard, Burstow, 2015 and Robert Whitaker, 2002).
MYTH/ CLAIM:
Chemical
imbalances have been established for most "mental illnesses."
FACT:
Not a single
chemical imbalance has ever been found for a single "mental illness."
MYTH/ CLAIM:
Even if there are
no chemical imbalances, there are other physical indicators of "mental
illnesses."
FACT: Not a single physical abnormality has been
found for a single "mental illness."
MYTH/ CLAIM:
Psychiatric drugs
correct chemical imbalances.
FACT:
Not only is there
no proof of this, there is incontrovertible proof that psychiatric drugs, rather,
routinely create chemical imbalances.
In the process brain damage commonly occurs, much of it irreversible (see Peter
Breggin, 1991).
MYTH/ CLAIM:
Psychiatry, like
other branches of medicine, proceeds via a painstaking process of scientific discovery.
FACT:
Psychiatry does
not "discover" "illnesses" but proclaims them, sometimes
via the mechanism of a vote, much like one votes for a candidate in an election
(itself an indicator of the inherently political nature of what is transpiring
-- for note, no one votes on whether or not tuberculosis is a disease). For a
window onto how this disease-making process actually works, see Stuart Kirk and
Herb Kutchins (1992).
MYTH/ CLAIM: The "mentally
ill" are dangerous, hence need to be controlled.
FACT: What evidence shows is
that people deemed mentally ill are no more dangerous than the average person. Correspondingly,
despite the panic that is whipped up whenever harm is done by someone deemed
mentally ill, people so deemed are typically far less dangerous to others than others
are to "them", with state-authorized "helpers" posing a special
problem (see Burstow, 2015).
MYTH/CLAIM:
Horrific developments
like the mass school shootings would have been prevented had only these
shooters been on psychiatric drugs.
FACT:
A "side
effect" of the drugs (the antidepressants and the stimulants especially) is
that they can badly impair judgment and give rise to a kind of intoxication named
"intoxication anosognosia." That said, while each major school
shooting has culminated in a call for youth to be systematically screened for "mental
illnesses," then put on psychiatric drugs as "needed," the frightening
reality is that the vast majority of the school shooters were on a therapeutic dosage of either
antidepressants or stimulants at the time
of the shooting -- a factor which would appear to be causal (see Breggin,
2000 and 2008). What is being taken as the solution, that is, is actually one
of the causes.
MYTH/ CLAIM:
New modified ECT (electroshock)
minimally is safe and effective.
FACT: There is nothing new
about modified shock, for it has been with us since the 1950s. Correspondingly,
as researchers like Collin Ross (2006) and Howard Sackeim et al. (2007) respectively
demonstrate, after six weeks no form of ECT outperforms placebo, and all result
in substantial, often overwhelming cognitive impairment.
MYTH/ CLAIM: Psychiatry serves
the public good.
-- Ah, but that
is precisely the crux of the matter.
The point is, it is transparently the case
that psychiatry permeates every facet of society, fashions how we think about
things, how we deal with one another--and the contention of this blog is that
is that besides that it is void of foundation, it is highly deleterious. We
have a historically unprecedented number of people hooked on mind-altering drugs
and brain-damaged. We have a veritable epidemic of iatrogenic (doctor-caused)
diseases. We have childhood itself treated like a disease. And we have a regime
that in its own way threatens the freedom of everyone.
That noted, the purpose of this blog is to help
us move beyond the hegemony that has bit by bit been build up around this institution.
It is about unmasking psychiatry, as it were, and promoting an "turn-about."
It is about finding ways that we as members of communities can take back our
power to govern ourselves and begin grappling with societal problems in a
benign, participatory, caring, egalitarian, and non-coercive way. Ultimately, it
is about finding ways to value and incorporate the unique wisdom and gifts of
everyone.
For those intrigued, please continue to
check out this blog. Correspondingly, in preparation for the challenging
journey ahead -- and it will be
challenging -- I would end this article by inviting readers to do three things:
Whatever your beliefs about psychiatry:
1)
Try using everyday terms for the distress you see around you, including your
own, that is, letting go of institutional terms and getting back to what you
actually see, hear, feel (examples of institutional terms are "mental
illness," "schizophrenia," "hallucination," "medication,"
"symptoms").
2)
Think of people that you know
that are alienated or distressed and ask yourself -- and them: What changes in society might help them feel less distraught,
less alienated, more part of the social fabric?
3)
Dare to imagine a more benign,
egalitarian, respectful, and participatory world.
References
Breggin, P. (1991). Toxic
Psychiatry. New York: St. Martins Press.
Breggin, P. (2008). Medication
madness. New York: St. Martins.
Breggin, P. (2000). Reclaiming
our children. Cambridge: Perseus Books.
Burstow, B. (2015). Psychiatry
and the business of madness. New York: Palgrave Macmillan.
Kirk, S. and Kutchins, H. (1997). Making us crazy: The myth of the reliability of the DSM. New York:
The Free Press.
Ross, R (2006). The sham ECT
literature and what it tells us. Ethical
Human Psychology and Psychiatry, 8,
17-28.
Sackeim H. et. al (2007). The cognitive effects of electroconvulsive
therapy in community settings, Neuropsychopharmacology,
32, 244-255.
Whitaker, R. (2002). Mad in
America. New York: Perseus Books.
Tuesday, August 11, 2015
What Do We Owe When a Shock Survivor Dies?: On the Death of Sue Clark-Wittenberg
On August 7, 2015, prominent ECT survivor
and antipsychiatry activist Sue Clark-Wittenberg died. That day, I sent the
following message to members of Coalition Against Psychiatric Assault (of which
Sue was one), also to my Facebook friends:
It is with
profound sadness that I am writing to let everyone know that Sue Clark
Wittenberg has just died, but hours ago . . . Everyone who knows anything about
Sue knows that she has been an enormously important person in the community of
people battling shock. A shock survivor since she was 17, Sue has fought
against ECT for decades and decades, with fierce determination. She received an
award from CAPA a few years ago for a lifetime of work combating psychiatry . .
. May her memory be as a blessing. (personal correspondence)
A few hours after
posting this, I began thinking about the loss of ECT survivor Leonard Roy Frank,
that magnificent ECT warrior, famous for his activism and scholarship (e.g.,
Frank, 1975/1978), who likewise passed away this year. I was honoured to be one
of those who memorialized Leonard. Then I found myself worrying who would memorialize
Sue. Shortly, thereafter, to my relief, tributes on Facebook began pouring in.
That noted, in
that moment of uncertainty, when I did not know whether or not people would
rise to the occasion in response to Sue’s death, a curiously existential question
came to me, which question, in part, motivated this article: What do we owe to
shock survivors when they die? Whether they are extremely famous like Leonard, legendary
but in more limited circles like Sue, or people leading comparatively obscure
lives? Whether they were activists or folk who never became involved in a
single social movement? Whether they
went on to do wonderful things like Sue or Leonard or simply went about their
lives? What do we owe to each and every one of them?
One answer to
this question which I would like to advance is that we owe them what we owe
everyone who underwent an atrocity that is ongoing, that is being visited on
others daily—doing something about that atrocity. Given, as shown by Breggin (2008)
and Burstow (2015), shock is anything but a legitimate medical procedure, given
that it is profoundly damaging, what we owe is doing everything in our power to
rid the world of the “treatment” so that never again is it visited on anyone.
Every time a survivor dies, it is minimally an opportune moment to renew our
commitment and our pledge to both bring an end to this treatment and to build a
world where brain-damaging people in the name of help would be unthinkable.
There
is something else that we owe them as well, something of a more personal nature—and
it is this that I will be honing in on in this article. We owe holding their experiences
in our memory. Indeed we owe something of this ilk to everyone subjected to ongoing atrocity, but the onus is all the more
pressing here given that this “treatment” is precisely about the destruction of
memory. More generally, we owe them taking very seriously the disjuncture that
happened to them, however long ago—and all that this disjuncture points to. To
be clear, the ethical imperative which I am referencing here is of both a commemorative and witnessing nature
for sure but likewise of a pedagogic nature. The point is that insofar as these
stories can be used to conscience-raise, we help make them something beyond
just the senseless tragedy which they otherwise are. A work of transformation,
I would add, which the survivor takes upon themselves each and every time that they
do us the courtesy of bearing testimony.
Which brings us
to the Sue Clark electroshock story. The key questions taken up in this article
are: What does Sue’s ECT story highlight? Exemplify? Teach us?
Sue’s
Story and its Significance
Who was Sue Clark in the years before ECT? She was a very bright child, with a powerful instinct for survival. She was also a child who had been subjected to ongoing abuse most of her life (see Burstow, 1994 and 2002, and Inquiry into Psychiatry, 2005).
Sue first ended up in a psychiatric
institution as a teenager. How and why? Initially, she ran away from an abusive
home, with that abuse at one point including sexual abuse. Now homeless, she began
missing classes at school. She was soon summoned to speak to the school
psychologist, who had concerns about her “absenteeism”. Upon hearing Sue’s
story, the school psychologist observed that Sue needed help and suggested an
appointment at the Royal Ottawa Hospital.
What can we learn
from the story thus far? That at that time, minimally, there was insufficient support
for abused children. What is also highlighted is the treacherous connection
between school and psychiatry. Note that Sue did not have a “mental health
problem”. Her “problem” was that she was being abused—and help in ending the
abuse and creating safety—this was the kind of assistance that would have been
useful. Instead the school psychologist began the process of redefining Sue’s
problem as “mental” and turning her into a “mental patient”. What is
highlighted here is at once the psychiatric transformation of social problems
into personal diseases and the implication of schools in that transformation.
It was at this
moment that Sue’s life as she knew it truly began to fall apart. One of the
first acts of the institution was to create a “family meeting”. At the meeting,
Sue courageously introduced the issue of the abuse. According to Sue, the
family responded, “Oh no, we never abused Sue.” (see Burstow, 1994) Whereupon, the
abuse as Sue had lived it was discounted, or put this another way, was turned
into a “symptom”.
What truths about
psychiatry’s mode of operating does the nature of the family meeting bring to light?
That once a redefinition has occurred, the newly minted “psychiatric patient” has
little credibility compared to everyone else. Indeed, the further at odds their
story is with the ones of those around them, including those being identified
as abusers, the more dire the mental illness that is likely to be assumed.
What happened to
Sue after that? Having entered the Royal Ottawa voluntarily, she quickly found
herself involuntary. States Sue, “Right away I was given heavy doses of
tranquilizers. I had no coordination as I walked down the hall and had to cling
to the walls.”(Inquiry into Psychiatry, 2015) In essence they drugged her into
a stupor while refusing to let her go. All of which points to the brutality and
the coercive of the “care” given long before ECT became part of her lived
reality.
Upon being released,
she went to live with her abusive family. Why? Because she had nowhere else to
go and no one so much as mentioned a single resource that she might access—a
reality which again points to the negligence of the “care” afforded the young.
More
hospitalizations and more infringements of rights followed. Horrified by the
daily infringement of her rights and understandably in despair over the turn
her life had taken, one day while under lock and key at the Royal Ottawa, this
increasingly desperate teenager tried to hang herself.
Obviously the
question that any thinking person responsible for her care should have asked at
this point was: Why did this youth resort to such a desperate measure? How are
we failing this person? What this part of the story highlights is that
questions of this nature are never asked. Instead, the institution continued to
interpret what was happening through the frame which they had adopted from the start.
To wit, her trying to kill herself, in their understanding, could mean only one
thing—that her “mental disorder” was “deteriorating” and so more aggressive
treatment was warranted. Whereupon, she was transferred to Brockville
Psychiatric Hospital. And it is here where ECT entered in.
Once at
Brockville, Sue was “informed” that she was going to be given ECT. This was a
moment of absolute terror for her. She protested, stating that she feared what
ECT would do to her. She was told that her worries were needless, that ECT is
safe and effective— responses which, as we all know, highlight the
misinformation which pervades the ECT industry (see Andre, 2009 and Burstow,
2015). What happened next? Something that
epitomizes at once power-over, indifference to people’s wishes, violence, and
trauma. ECT was physically forced upon Sue, this I would add, despite the enormity
and indeed transparency of her objection to it. In this regard, Sue tells us:
On the morning
of my electroshock therapy, I yelled and screamed as loud as I could, I bit the
staff and I kicked them . . . but no one came to my rescue, no one helped me .
. . Eventually the staff forced me into
the ECT room . . . I yelled to the staff
that I did not want ECT . . . No one listened . . . It was a traumatizing
experience that haunts me to this day. A rubber band was wrapped around my
forehead and a rubber mallet put between my teeth. Then the psychiatrist turned
on the shock machine and zapped me with electricity through the brain. (Inquiry
Into Psychiatry, 2005)
While of course not
all ECT administration involves people kicking and screaming in protest, what
this story writes large is that everything about ECT is violent. That the
entire experience is traumatizing. A reality which is all the more horrific
when you factor in what allowed this to transpire in the first place—besides
the avarice and the grandiosity of the ECT industry, a obvious distrust of youth,
a dismissal of people’s words, rights, choices, a willful disregard for very
real circumstances of people’s lives, an arrogance of massive proportion, and what
minimally looks like callousness.
What has happened here? A young woman was abused
at home. She was persuaded to seek help only to be imprisoned and otherwise abused
by the so-called helping institution. Moreover, she was singled out for a
experimental treatment that was already known to be brain-damaging (see
Breggin, 1979).
Now people
reading the literature on the efficacy of ECT with suicide might consider the
choice of ECT appropriate in this instance. But here not only the senselessness
of psychiatry but the groundlessness of official ECT claims are highlighted. Besides
the fact that there was a simple solution to what was now seen as Sue’s
“suicidality”—listening to her and stopping abusing her—the point is, as documented
in Burstow (2015) and Breggin (2008) just as ECT has no efficacy in general, it
has no efficacy whatever with “suicide”. That said, insofar as we are trying to
figure out what the story so far has to teach us, there is one additional dimension
to factor in, albeit one less obvious.
Step back and
look at what is happening at this juncture and what led up to it. The adult
male is forcing ECT on the female youth. This is adultism and indeed child
abuse at the extreme. What is perhaps less obvious to some, though, it is also
sexism. The woman’s story, significantly, is disbelieved. It is assumed that “the
woman” needs ECT. And, note, the statistics on gender are clear: Throughout the
entire history of shock, two to three times as many as women as men receive ECT
irrespective of whether or not they are deemed “suicidal”. For a possible
explanation of why, I would draw attention to this historical statement by shock
promoter Abraham Myerson:
I
believe there have to be organic changes or organic disturbances in the
physiology of the brain for the cure to take place. These people have for the time being at any
rate more intelligence than they can handle . . . and the reduction of
intelligence is an important factor in the curative process. (quoted from
Breggin, 1979, pp. 142-143)
Given the statistics,
it is clear that the people covered by Myerson’s term “these people” are
largely women, and that on some level, the reduction of women’s intelligence is
being deemed acceptable, and beyond that, desirable.
To
make a more general statement about gender here (though this part is not so clear),
Sue might not have been abused to this extent had she been male—certainly, was less
likely to be sexually abused, given
what we know of sexual abuse. Had she been abused to this extent, she was less
likely have landed in a psychiatric facility. And had she landed in psychiatric
facility—and here the statistics are irrefutable—she would have been far less
likely to be subjected to ECT. What is relevant in this last regard, throughout
the history of electroshock, irrespective
of diagnosis, women have received ECT two
to three times as often as men (for an example of a current statistic, see
Weitz, 2009).
How
many “treatments” did Sue end up having? Five. All against her wishes. All
brutal. Why so few? Because a physical “complication” entered in, forcing them
to stop.
What
happened after that highlights additional realities about shock. From that
period hence, Sue was someone who suffered from major memory and cognitive impairment,
The hospital had done its “job”, and now she was forced to live her life with
the consequences. Which for all intents and purposes boils down to this: Whatever
her original dreams may have been—becoming a philosopher, having a regular
job—thanks to a purported “safe and effective treatment”, all such options were
now nullified.
And
here one further fundamental truth about ECT is highlighted—how little it takes
for massive damage to happen. Sue, note, had five treatments only—a very low
number. While ECT advocates sometimes suggest
that trying a few treatments could not hurt—the consequences for Sue, as for
legions of others, demonstrate otherwise.
The
point is no matter how many shock are given or what type of shock is used, the memory
loss can be enormous. Nor does it self-correct. The memory loss is not, that is,
as promoters like Fink (1979 and 2009) are so fond of claiming, minor and
transient.
Flash
forward: For the rest of her life, Sue had to take notes all day long just to
keep track of what was happening. “I’ll be talking to you today,” she stated in
my video, “and tomorrow, it’ll be hard for me to recall . . . our
conversation.” (Burstow, 1994). She
further stated 11 years later:
I have a
difficult time remembering things from hour to hour, let alone from day to day.
I forget to mark things down in my date book and I have forgotten appointments,
meetings, trips, conferences, and the list goes on. People come up to me to
this day and say, “Do you remember me—and I don’t know who they are. I can’t
remember some of my neighbours’ names who I see on a daily basis . . . You
can’t get a job when you can’t remember. You can’t go to school to get a good
education if you can’t remember anything . . . Marking things down doesn’t even
help me much for I forget where I wrote the things down. (Inquiry into
Psychiatry, 2005)
A
reality, I would add, which not only points to the damaging nature of this
treatment—which it surely does—but once again points to the gender dynamic. In
this regard, Sackeim et al. (2007) conducted the large study in ECT history and
they established at a level of statistical significance that women administered
ECT become more cognitively impaired that men, with inability to recall details
of their lives particularly pronounced.
In summary, what
Sue’s story reveals and reveals powerfully is the damaging nature of ECT
particularly and psychiatry in general, psychiatry as an inherently oppressive
and inherently dishonest institution, the foundationlessness of ECT as a “treatment”;
the destruction of self that is part and parcel of ECT; psychiatry’s erasure of
the social nature of people’s problems; and the dearth of real help for people
in difficult predicaments. It likewise sheds light on the degree of social
buy-in into psychiatry, with psychiatry’s cooptation of our educational system
especially highlighted. And last but hardly least, it sheds light on the role
played by sexism and ageism.
That said, what we can learn from Sue’s life hardly stops here. Sue’s life likewise
offers us a glimpse into a very different reality. And I could not end this
article without also focusing in on it. The damage done to Sue was horrific and
beyond dispute. The point, however, is, as philosopher Jean-Paul Sartre (1943/1956) put it decades ago, we can
always make something of what has been made of us—and indeed Sue did—and did so
brilliantly and with panache.
Albeit while persistently having to take notes all day long—and to be
clear, these dire effects never subsided—after
consulting with a few of us when in her early 20s, Sue went on to become a
fearless antipsychiatry activist and one of the world’s foremost advocates
against ECT. In the end, as those of us who have had the privilege of knowing this
remarkable woman are well aware, Sue led a highly meaningful live—a life of commitment,
humanity, generosity, and integrity—and in the process, besides accomplishing
much, she became a critical part of the social justice landscape and an
inspiration to those around her. She demonstrated against ECT tirelessly. She meticulously highlighted what the research actually shows. She
created numerous myth-fact sheets. She was co-founder along with her husband
Steve of the enormously important International Campaign to Ban Electroshock
(ICBE) and she managed its website (see https://intcamp.wordpress.com/).
She wrote poems about ECT. She created and disseminated petitions. She
networked with other activists and with legislators and scholars across the
world. She made deputations. And she created her own whistle blower hotline.
And whenever a hearing was happening, a video
being made, there was Sue offering thrillingly frank testimony, never missing
an opportunity to draw on her own experience to expose and teach. She also
pointed the way, not only insisting on the importance of ending ECT but also of
targeting the state.
In this last
regard, to end this article the only way that I could imagine it ending, with a
quote from the fearless, the outspoken Sue Clark-Wittenberg—here is Sue at her
quintessential best, mincing no words, and announcing to everyone that ECT is
torture in which the State itself is complicit:
All
the therapy in the world is not going to erase the scars of being dragged into
a room, having a band on your head, and having your brains fried. People say
there’s no torture in Canada. That’s pure bullshit. And excuse my language. There is torture
being paid for by the Ministry of Health. (quoted from Burstow, 1994)
In the end, what words
better than her own to show who this remarkable woman was? And what words better than hers to
commemorate her?
References
Andre, L. (2009). Doctors of
deception. New Brunswick, New Jersey: Rutgers University Press.
Breggin,
P. (1979). Electroshock: It’s
brain-disabling effects. New York: Springer.
Breggin,
P. (2008). Brain-damaging treatments in
psychiatry. New York: Springer.
Burstow,
B. (2015). Psychiatry and the business of
madness: An ethical and epistemological accounting. New York: Palgrave
Macmillan.
Burstow,
B. (1994). When women end up in those
horrible places. Video. Burstow: Toronto.
Fink,
M. (1979). Convulsive therapy. New
York: Raven.
Fink,
M. (2009). Electroconvulsive therapy.
New York: Oxford University Press.
Frank,
L. (1975/1978). The history of shock
treatment. San Francisco: Network Against Psychiatric Assault.
Inquiry
into Psychiatry (2005). Retrieved August 9 2015 from https://coalitionagainstpsychiatricassault.wordpress.com/articles/personal-narratives/
Sackeim,
H. et al. (2007). The cognitive effects of electroconvulsive therapy in
community settings. Neuropsychopharmacology, 32, 244-255.
Sartre, J-P (1943/1956) Being and nothingness (Hazel Barnes,
Trans.) New York: Pocket Books.
Weitz, D. (2009). ECT
statistics 2008. Unpublished statistics released under Freedom of Information.
Austin.
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